For You and For Pam and For Me ~ Jen

Dana’s dad, Allen Builteman, passed away on Saturday, May 11, 2013.

Dana might tell the story someday. It’s beautiful. He died peacefully surrounded by the ones who loved him most.

Dana and I had big plans for Mother’s Day on this blog. We have amazing moms. We were going to talk about them.

But then Allen got so sick. And my mom, God bless her, said “Spend the day with your family. We’ll celebrate my Mother’s Day another day”. So I am not going to talk about my mom, Terri, or Dana’s mom, Pam. This week has brought us a little too close to the sacred space of parents, and there just aren’t good or adequate words for us right now. I’ll ask you to pray for them, though. Especially Pam.

When I talked to Dana yesterday morning, she said to me “Have a happy Mother’s Day for me.”

Ok, I thought. I will, dammit. For you and for Pam and for me.

So we went here.

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This is Coronado, Ca, one of my favorite beaches in the world. It’s worthless during the month of June and half of July because of gloom. But May can be beautiful.

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And this is the world famous Hotel Del Coronado. The Del is over 100 years old and one of the largest all-wooden buildings in California.  The lobby is unbelievable. And yes, it is haunted.

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The water was Hawaii clear. This is not normal for California. And my legs are not that white. It’s the Instagram.

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It never fails that every time we go, Kate will scream “MOM! GOLD!!!” I don’t know what that is in the sand and I am too tired to look it up. But it’s cool.

Lastly, there’s this. I think the Del owns the beach in front of the hotel and they oh-so-nicely put a bar right on the boardwalk. So we got these. Seemed right.

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For Allen. For Dana and for Pam and for me. For Terri. For all moms. For all dads. For that sacred space that is our parents. For the love of God.

And for beautiful days at the beach.

Christians and Gun Control ~ Jen

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“My job is not to tell you for whom you should vote. But I do have a duty to speak out on moral issues. I would be abdicating this duty if I remained silent out of fear of sounding ‘political’ and didn’t say anything about the morality of these issues… a vote for a candidate who promotes actions or behaviors that are intrinsically evil and gravely sinful makes you morally complicit and places the eternal salvation of your soul in jeopardy.” Bishop Thomas John Paprocki, Catholic Diocese of Springfield, Illinois.

Amen, Bishop. Amen.

So you’ll have something to say soon about the lawmakers who vote against common sense gun control measures? The lawmakers who voted against background checks the other day?

Because in 2008 and again in 2012, I sat in church and listened to my priests and deacons preach against pro-choice and pro-gay rights candidates. I listened to them condemn by name elected Catholic Democrats, such as Nancy Pelosi, because of their beliefs.

One priest, echoing Bishops across the country, told us that if we voted for any candidate who supported abortion rights, we were sinners who “cannot call ourselves Catholics”.

As a Catholic Democrat, who acknowledges the spiritual leadership of the Church, I was concerned. Shea and I searched our souls and beliefs to make sure our reasons for voting Democrat were supportable by church teachings.

And you know what? They are supported, by the words of our very own bishops, who have said “Catholic teaching about the dignity of life calls us to oppose torture, unjust war, and the use of the death penalty; to prevent genocide and attacks against noncombatants; to oppose racism; and to overcome poverty and suffering. Nations are called to protect the right to life by seeking effective ways to combat evil and terror without resorting to armed conflicts except as a last resort, always seeking first to resolve disputes by peaceful means. We revere the lives of children in the womb, the lives of persons dying in war and from starvation, and indeed the lives of all human beings as children of God.” (A Call to Political Responsibility from the Catholic Bishops of the United States)

Take this statement and apply it to the Republican platform, which would deny assistance to mothers who opt to have their babies, instead of abort;  build a wall between the US and Mexico and arm it to keep desperate immigrants out of this great nation of immigrants;  raise taxes on the poor and hardworking to protect the wealth of the rich; support big business and free trade, despite the damage it does to our economy and workers abroad, and despite Pope Benedict’s call to hold corporations accountable for their business decisions; and support the death penalty, which is murder.

Voting Republican might also put a soul in danger.

My point is that it’s not easy to be a Christian voter. It just isn’t. This nation has an imperfect political system, and neither platform really meets the standards of a Christian voter.

But sometimes, issues are easy. And gun control is a moral slam dunk.

Look back at what the Bishops said. If we are pro-life from birth to death, then gun control is a Christian moral value. If we seek first to resolves disputes peacefully, and if we revere all human beings as children of God, then gun control is a Christian moral value.

If we believe in the New Covenant made by Jesus on that cross and that God calls us to love and that we demonstrate that love by treating others the way we want to be treated, then gun control is a Christian moral value.

There is no moral high ground to support assault weapons in the hands of ordinary citizens. The entire purpose of assault weapons is to kill as many people in as short a time as possible. In the hands of non-military folk, this purpose is “intrinsically evil” and therefore morally nonsupportable.

There is no moral high ground to stand against a simple thing like back ground checks. To argue that background checks infringe on personal rights and privacy is disingenuous in a society where so much of our personal lives are online by our own choice.  And anyone who has something to hide from a gun-related background check is probably a threat to society. Protecting them is morally nonsupportable.

As our spiritual leaders remind us so often, this is a nation founded on Christian beliefs. If we are one nation under God, and call ourselves servants of God, then we must do as the Bishops require and “protect the right to life by seeking effective ways to combat evil and terror without resorting to armed conflicts except as a last resort”.

So where’s the pulpit outrage and thunder on this issue?

My priests and deacons have been silent. My bishop has been silent. This despite public support for President Obama’s proposal from the Vatican. And the fact that so many of those sweet babies in Newton were buried out of their local Catholic church.

In fact, the entire American Christian church has been largely silent.

How can this be?

We Are Not Alone ~ Guest Post

My friend and I had our babies five weeks apart. Three years later, I was driving home from work when she called to tell me that her son had been diagnosed with Autism. In the two years since diagnosis, they have walked the path of grief, acceptance and advocacy. They are so brave.

One day she told me she was done with people who didn’t get it, were in denial or tried to change the topic. “This is our reality. There’s no more question. If people can’t handle it, I can’t handle them.”  It was a hard moment. But she was telling me to get in her space. The journey had changed from diagnosis to treatment and there was work to be done. 

In honor of Autism Awareness Month, we are pleased to welcome her to our blog.

~~~~~~~~~~

Aaron

I am a 39 year-old married mother of a 4 ½ year old son with autism. He is my only child.

The first question people ask when they hear my son has autism: “Is he like mildly or severely autistic?” They need a label. I have been asked, “Is he like rain man? Does he sit in the corner and rock? Or is he just a little odd?” Maybe knowing the severity of the autism determines the kind of support they will give? Maybe the response determines how they are going to feel about my son’s autism?

The question of severity is almost always awkward for me. What do I say? How much detail do I give? Should I tell them my son uses echolalia (the involuntary and immediate repetition of words or sounds made by other people)? Do I say he uses scripts from his favorite TV shows to communicate? Do I share that he didn’t sleep more then 2-3 hours in the first 2½ years of his life and that his receptive/expressive language is at a 2 year-old level? What would you say if it were your child?

Should I say he is moderately to severely autistic? My son has been assessed by multiple neurologists, psychologists, ABA therapists, ABA supervisors, two primary physicians, OT therapists, PT therapists, special education teachers and speech therapists. Not a single one of these highly trained professionals can or will answer the question of severity, so how can I answer it?

The reaction to the “label” or description of symptoms will indicate how the rest of the conversation will go.  Keep in mind I am talking about colleagues, friends and even family members. Some people make me feel loved and supported, while others leave me feeling isolated, frustrated and alone.

The following are some comments I HATE to hear the most:

  • God only gives you what you can handle.” OK, but this is not helpful when your heart is broken and every day feels like a struggle.
  • “There’s a reason for everything.” I am a very spiritual person and I do feel there is a plan. However the comment feels lazy and makes the other person feel better.
  • “Your son is so lucky to have you.” I can’t pinpoint why this one hurts, but it does. Maybe it’s because I am the lucky one? No matter how hard this journey gets, my heart overflows with love and gratitude for my beautiful baby boy.
  • “There are so many therapies now and things you can do for those kids. He’s going to be fine.” These words minimize the whole experience in one swoop.
  • “Oh that’s no big deal, my kid does that.” UGH. No, your kid doesn’t do that. I want to say “Really? When you ask your child the most basic of questions, do they have the ABILITY to answer you? Are they 4 ½ years old and still in a diaper? Are you able to take them to a family party without your child going into an anxious frenzy that requires two days of recovery? Do they echo back everything you say?” I could go on and on. When someone says, “Eh, my kid does that” my heart drops. The subtext of the comment is, “Yeah, what you’re saying is no big deal. Stop whining. I don’t want to hear it. You’re a drama queen. Get over it.”

And sometimes people say beautiful things, but if it’s delivered with a “just stop whining” implication, then the words hurt.

When people make comments that sting, I remind myself people do the best they can. However, that person and their poorly thought out comments create a palpable distance. I slink away from the relationship. I realize it is my job to make that person feel better about my child’s disability. And trust me, I don’t have the time to make you feel better about my child’s struggle. At one time I did and said anything to make other people feel better about the autism, but now I have no time for that nonsense.

Here is a list of things I find most helpful:

  • “We love you and we are here for you.” Coupled with a hug, I LOVE this one!
  •  “Is there anything I can do to help or make things easier?”
  •  “That sucks!” A heart-felt “That sucks” does wonders.
  • “This must be hard.” YES it is, and your acknowledgement of the challenge means the world to me.
  • “It sounds like you guys are doing a good job.” Please know this means so much because every single day I worry I am not doing enough or more so, that I am not enough.
  • “I can’t imagine how hard that must be.” Thank you for being honest, because the truth is that unless you live with a child who has special needs you do not know what the experience is like. Your honesty is refreshing.

The most loving, helpful responses are from people who communicate to us they are simply willing to be a witness to our family’s journey and struggle.

They don’t look away because it’s too painful. They have a willingness to sit with the pain we are feeling.

They put their arms around us and tell us we are not alone.

Aaron 2

We Are Raising a Man ~ Jen

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A few weeks ago, I watched a young boy hitting and tackling and tattling his way through a party. His dad refused to intervene, saying “The other kids have to stand up for themselves. When they’ve had enough, they’ll hit him back. It’s no big deal. Boys will be boys!”

There’s been a lot of conversation the last few weeks about what that phrase means. You know, in places like Steubenville, OH.

So here’s my two cents.

Before Gabriel was born, my experience with boys came from teaching 16 year old boys: smelly, crude, hopeful, strutting, foolhardy, proud.

The cinnamon challenge, after all, was invented by boys.

A few years back, Eric came walking into my first period minus his left eyebrow. The whole thing. His team lost the Super Bowl, so he lost his eyebrow. He was proud he had paid up on his bet. That strip of pale skin was a badge of honor.

Shea has some stories, too. He grew up on a sugar cane plantation on Maui, climbing banyan trees, swimming in irrigation ditches and sleeping in caves. He’s been bitten by scorpions, geckos, centipedes, crabs and a parrot. He fell out of the tree in his front yard and broke his nose. Twice. His mom told him to put some ice on it and shake it off.

And the apple did not fall very far from the tree. Last week, Gabriel went downstairs to get a pillowcase out of the laundry room and didn’t come back. I yelled down the stairs to find out what was taking so dang long.

“I can’t get past the dog gate.”

Why didn’t you ask for help?

“I was trying to build a bridge over the gate.”

My sister-in-law reminded me of the family party when her mom heard the boys yelling “Walk the plank! Walk the plank!” They had taken the flimsy cardboard sandwich board and stuck it between the bed and the top of the dresser. When she caught them, Gabe was just about to take the first step.

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And there are six boys across the street from us. The youngest ones are Gabe’s favorite accomplices buddies. Mostly they play loud and rough, with the older brothers to referee. It’s when they get quiet that we worry. Like when they concocted a plan to turn the lawn red. By the time we caught them, they had the red dye in the water, ready to go.

All of this is in my wheelhouse as the mother of a boy, along with dinosaurs, rock collections, bug catchers, and pee in the trashcan right next to the toilet.

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But violence? Nope. Even when he was hitting at age 3, we doubled down and put a stop to it. We never ever shrugged our shoulders and said “What can we do?” And we surely never expected someone else’s older, stronger child to “teach him a lesson”.

The problem is that we still box boys into two categories: “all boy” and “mama’s boy”. We stopped doing this to girls 30 years ago. But boys are either strong or weak; winner or loser; hard or soft. Worse, we confuse physical aggression with physical strength. Somehow, we feel better if our short son socks the taller boy right in the face. We think this proves that he has “guts”.

And we confuse physical strength with godliness. At a football game a few weeks ago, the opposing coach apologized to Shea in advance for how badly they were going to beat us. “My son is ranked in the Top 100 of five year olds in Junior All-American” he said.

Dad was 5’7” in his cleats and mom was a petite little blond. I am 6’1″ and Shea is 6’5″. Gabe had his Top 100 son by four inches and 20 lbs. Dream on, I thought. We’ll see how they’re ranked when they’re 15.

See? Even with the best of intentions, it’s hard not to get sucked into the competition.

Whether my son plays the violin or football, he has to learn to be a good person. No one will cheer louder than me when he sacks the quarterback fairly. Or wins the violin competition. But that will not be the measure of my success as a parent.

When he reaches down to help the quarterback up, or shakes the other violinist’s hand, then I will know I am on the right track.

When he loses gracefully, cheers for the winners and knows that his wins and losses do not define him as a man, then I will know I have succeeded.

Real men believe in God. They do not use their fists, feet, or weapons to make their mark. They respect themselves, and others, and show courage for what is right in the face of danger or censure.

Maybe boys will be boys. But I didn’t marry a boy. And we are not raising a boy.

We are raising a man.

Mary Meets Jesus~ Jen

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It’s Holy Week. So I’m going to be repentant and reflective one more time. And then, with the Easter season, we will embrace the warmth and light and love of Spring.

When I first saw The Passion, it was on DVD. There was no way I was facing that thing down on a large screen. I knew it would hurt me, and it did. Not when they flog Jesus. Not when they nail Him to the Cross.

When Mary meets Jesus.

She’s following her Son, but not where He can see her. She’s hiding. She knows she has to witness her Son’s pain. But she’s terrified.

She leans against a wall, agonized. He’s coming, she can hear the crowd, and if she doesn’t turn now, He won’t see her. Then He falls. And in her memories, she sees Him fall as a baby. As she did when He was young, she runs to Him and says “I am here”.

Watch it here.

Jesus’ suffering was immense, and purchased my salvation. He is my Lord and Savior.

But I relate to the women of the Passion: suffering Mary, brave Veronica, and the weeping women of Jerusalem. Now that I have children, Mary’s story is personal.  She was obedient, but God asked so much of her and her faith never waivered.

How did she survive it?

My journey this Lent has been to let go—of the paralyzing fear that feeds my need to control and steals my joy.

And Mary’s story, the loss of a child, is the thing I fear the most. The Worst Thing.

I found a story a few months ago, when Glennon from Momastery posted it on her Facebook page. I think that reading this story was the first step on my Lenten path. I believe that examples of Mary walk among us. And I believe this is how we survive the Worst Thing:

Nelba Marquez-Greene’s daughter, Ana, died at Sandy Hook Elementary on December 14.

On January 14, Ana’s parents gave an interview to Good Morning America. You can see it here. It’s rough. Nelba’s pain is fresh, her face is worn.

Afterwards, through a mountain of love and support, some folks also called her motivations into question.

Nelba responded on Facebook:

I wept when I read some of the comments after our interviews. Most were beautiful. Some suggested we were actors. Oh how I wish that to be so. It was purely by God’s grace we had the strength to stand yesterday and everyday since December 14th. One comment read, “So fake. These people are actors. What 6 year old loves God”? Well I’m here to let you know that our six year old loved God! So DOES my eight year old. So do I. So does my husband…For me, love is not about what others choose to feel or act or say. It’s about what I choose to feel or act or say. I choose love. 

Then she said this:

Evil visited Newtown. Now it’s our choice to respond. We choose good. We choose life. We choose hope. We choose that even though we’re sad and we weren’t perfect parents we got one thing right- we invested in eternal things.

Eternal things. An Ultimate Plan. A Life after Death.

Jesus died on that cross to save us. It was horrible and painful and bloody. But it was also Glorious and Loving and Amazing. God’s love wins.

That’s what Mary knew. That’s how she survived the Worst Thing. That’s what Nelba knows. That’s how she’s surviving the Worst Thing.

On Sunday morning, we celebrate the victory. No more fear. God’s love wins.

https://www.facebook.com/RememberingAna